♥ Book Title : Someone I Love Has ALS
☯ Full Synopsis : "Kevin and Jodi O'Donnell, were a young New Jersey couple busy raising a toddler and making plans for their future when they received life-altering news in 1995 that changed everything as they knew it. Kevin was only 30 years old when he was told that his health problems were the result of a rare, terminal disease called ALS (Amyotrophic Lateral Sclerosis), or Lou Gehrig's disease. Kevin and Jodi had not heard of ALS until then and had no idea how those three letters would challenge everything they thought to be certain. After more than 20 years of working with ALS families, Jodi realized that more information and better resources could be available to help families who are coming to grips with the challenges of the disease and the caregiving responsibilities that are involved. In the Introduction to "Someone I Love Has ALS: A Family Caregiver's Guide," Jodi recounts the journey she took as a caregiver, advocate and writer and embraces and shares the lessons learned throughout the pages of this wonderful guide, "This guide was created by a variety of caregivers and professionals who have years of experience with various aspects of ALS. It was written by volunteers and experts who care about ALS and your journey. It is the resource that I wish we had received along with the shocking diagnosis." Although Kevin died of ALS in 2001 at the age 35, the disease never won the battle. ALS only strengthened Kevin and Jodi's love for God and each other and it created an even bigger purpose and plan: the creation of Hope Loves Company(r), the only non-profit whose mission is to support the children and grandchildren caregivers of PALS (people with ALS)."Article| Jodi O'Donnell-Ames| Statement ..."
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♥ Book Title : Someone I Love Needs a Cure Als Awareness
☯ Full Synopsis : "Bring awareness to ALS awareness,Amyotrophic lateral sclerosis,Lou Gehrig's disease, Charcot's disease,motor neurone disease (MND), voluntary muscles,motor neuron disease. Find cure. Perfect travel size."Article| Fight Als| Statement ..."
♥ Book Title : Lou Gehrig Disease, Als Or Amyotrophic Lateral Sclerosis Explained. Als Symptoms, Signs, Stages, Types, Diagnosis, Treatment, Caregiver Tips, Aids And
☯ Full Synopsis : "The author, Robert Rymore, had a good friend who was diagnosed with Lou Gehrig Disease. He wanted to be able to help her and decided to buy some books about the disease. To his disappointment there was a lack of good informative books available on the subject. He decided to investigate the subject thoroughly and write a book about it to be able to help others. He decided he would start talking to professionals - doctors, physical therapists, speech therapists and occupational therapists - to learn more. He quickly realized the information he was getting would be extremely valuable for other people with ALS and their loved ones. This book has been a labor of love, one born of necessity and certainly one that aims to help those with ALS, their families, and their friends. ALS symptoms, signs, stages, types, diagnosis, treatment, caregiver tips, aids and what to expect is all covered. Including chapters about financial considerations, famous people with Lou Gehrig Disease and resources. The book is written in an easy to read and understandable style and contains tips for caregivers."Article| Robert Rymore| Statement ..."
♥ Book Title : Navigating Life with Amyotrophic Lateral Sclerosis
☯ Full Synopsis : "Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS, a disease that affects approximately 5,600 Americans every year, with as many as 30,000 people managing the disease at any given time. ALS is a difficult disease for the patient and is also challenging for the caregiver and family as there are many questions, issues relating to care, and problems to manage. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Navigating Life with Amyotrophic Lateral Sclerosis is unique because it covers two perspectives: one author is a neurologist with 30 years of experience treating ALS patients, and the other author experienced first-hand the issues in providing care for a parent with ALS. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease."Article| Mark B. Bromberg| Statement ..."
♥ Book Title : What You Need to Know about ALS
☯ Full Synopsis : "This book offers an accessibly written introduction to ALS, focusing on the topics that matter most to anyone whose life has been affected—directly or indirectly—by this condition. • Approaches the subject in a holistic manner, covering often-overlooked areas such as societal perceptions and impacts on family and friends • Provides quick answers to the questions that readers are most likely to have in an Essential Questions section that also serves as a springboard for understanding the content of the book in greater depth • Provides relatable, real-world examples of concepts discussed in Case Illustrations • Points readers toward useful books, organizations, and websites in an annotated Directory of Resources guiding further study and research"Article| Harry LeVine III| Statement ..."
♥ Book Title : I Remember Running
☯ Full Synopsis : "A little over a year ago, Darcy Wakefield was a single, 33-year-old, athletic, workaholic English professor, a vegetarian who had never had a serious health problem or injury. Then she was diagnosed with ALS, and her world turned upside down. I Remember Running is Darcy's story of change and loss and challenges during her first year with ALS, as she struggles to make sense of her diagnosis and redefine herself in the face of this terminal illness. With unflagging courage, wit, and eloquence, Darcy shares what she calls her "fast-forward" life, a life in which she applies for disability, leaves her job, and plans her own funeral as well as meets and moves in with her true love, buys a house, and gives birth to her first child in less time than it takes most of us to accomplish even one of these things. Beautifully written and wholly inspiring, I Remember Running proves that it is possible to live a rich, meaningful life after being diagnosed with a terminal illness. This book will move readers to see the world in a different light."Article| Darcy Wakefield| Statement ..."
♥ Book Title : Joy and Suffering
☯ Full Synopsis : "Martin D'Amore and his wife are both doctors, so when they began to notice possible ALS symptoms in Marty, they desperately looked for other causes. But after many tests and meetings with experts, Marty finally got the word, he had Lou Gehrig's disease, and the clock began to tick. ALS robs its victims of their physical abilities, from their muscular activity, to their nervous system, and, finally, their ability to even breathe. All the while, the mind remains intact. It is a brutal, often soul-crushing disease, and yet Marty has persevered and even grown as a result of ALS. Discover how Marty's battle with ALS has led him to a greater relationship with Christ, a better understanding of himself, and, finally, to great contentment and happiness. Whether or not you or someone you love is battling ALS, this inspiring true story of love and courage will help you find joy through your sufferings."Article| Martin J. D'amore, M.d.| Statement ..."
♥ Book Title : My Dad Has ALS?
☯ Full Synopsis : "This is the story about little boy whose dad has Lou Gehrig's disease, or ALS, and how they cope as family."Article| Rachel Silverman| Statement ..."
♥ Book Title : AL'S TWISTED MIND
☯ Full Synopsis : "Al lives in turmoil with masochistic thoughts. Marie becomes his wife. She doesn't love him, but within two years she does, and then he comes forward with his plan for her to be partner in his sexual deviations which she isn't prepared for. Al's promise, of "Just one more time," and I will change," gives her hope that someday he will. She hangs on to her oath, "Until death do us part" and participates in his sexual needs, his way, staying just one more time over and over for twenty-four years before her endurance gives way, and she lands into the arms of a playboy lover."Article| Marie Jensun| Statement ..."
♥ Book Title : Tuesdays with Morrie
☯ Full Synopsis : "Its been ten years since Mitch Albom first shared the wisdom of Morrie Schwartz with the world. Now twelve million copies later in a new afterword, Mitch Albom reflects again on the meaning of Morries life lessons and the gentle, irrevocable impact of their Tuesday sessions all those years ago. Maybe it was a grandparent, or a teacher, or a colleague. Someone older, patient and wise, who understood you when you were young and searching, helped you see the world as a more profound place, gave you sound advice to help you make your way through it. For Mitch Albom, that person was Morrie Schwartz, his college professor from nearly twenty years ago. Maybe, like Mitch, you lost track of this mentor as you made your way, and the insights faded, and the world seemed colder. Wouldn't you like to see that person again, ask the bigger questions that still haunt you, receive wisdom for your busy life today the way you once did when you were younger? Mitch Albom had that second chance. He rediscovered Morrie in the last months of the older man's life. Knowing he was dying, Morrie visited with Mitch in his study every Tuesday, just as they used to back in college. Their rekindled relationship turned into one final class: lessons in how to live. Tuesdays with Morrieis a magical chronicle of their time together, through which Mitch shares Morrie's lasting gift with the world."Article| Mitch Albom| Statement ..."
♥ Book Title : Als
☯ Full Synopsis : "Eliot H. Dunsky, MD, is a retired physician who since his diagnosis in 2009 has been living with ALS, the complex, progressively debilitating disorder commonly known as Lou Gehrig's disease. Determined to maintain the best quality of life possible-for as long as possible-he extensively researched the condition and its management. As he immersed himself, talking to ALS patients and exploring emerging assistive technologies and aids, he realized that misunderstanding of this complicated disease was rife, preventing many from making the most of the precious years left. The result is this compilation of not only his personal experiences as his own condition advanced but also current research and links to additional specialized resources. Its aim is to help other patients learn to live with their diagnosis and navigate the day-to-day struggles associated with it. Appropriate symptom management can help fend off the devastating effects of the disease for a longer period of time. ALS: An Orientation offers a practical guide for patients and their families on maximizing quality of life through strategic care and, importantly, coping with the emotional toll the disease can take. A terminal diagnosis simply means savoring to the fullest the life that is still possible."Article| Eliot H. Dunsky, M.d.| Statement ..."
♥ Book Title : The Luckiest man
☯ Full Synopsis : "How do you experience God's intimate, comforting, tangible presence? In The Luckiest Man, John Paine reveals how he found the answer to this most important of all questions--by facing a terminal diagnosis. At middle age, John Paine thought he knew what it meant to have a relationship with God. He was a successful businessman, a well-respected Christian leader, a Bible teacher, and--outwardly, at least--the spiritual leader of his family. He was satisfied and thought he understood what it meant to know and experience God. But did he? John's journey into true, mystical intimacy with God began when a neurologist diagnosed him with ALS, or Lou Gehrig's disease, and said, "Go home and get your affairs in order." Seventeen years later, John tells his story, recounting the ways God intervened in his life, freeing him from all that prevented intimacy with God, even as John slipped into pain, paralysis, and further toward death. In stunning, insightful prose, The Luckiest Man points to the God who lovingly, though occasionally painfully, drew John into the richness of friendship. In this profoundly moving memoir, John Paine reveals the secret to intimacy with God and provides hope to all who are in the middle of their own trials. They, too, will understand why John considers himself the "luckiest man.""Article| John R. Paine| Statement ..."