♥ Book Title : Navigating Life with Amyotrophic Lateral Sclerosis
☯ Full Synopsis : "Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS, a disease that affects approximately 5,600 Americans every year, with as many as 30,000 people managing the disease at any given time. ALS is a difficult disease for the patient and is also challenging for the caregiver and family as there are many questions, issues relating to care, and problems to manage. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Navigating Life with Amyotrophic Lateral Sclerosis is unique because it covers two perspectives: one author is a neurologist with 30 years of experience treating ALS patients, and the other author experienced first-hand the issues in providing care for a parent with ALS. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease."Article| Mark B. Bromberg| Statement ..."
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♥ Book Title : Amyotrophic Lateral Sclerosis
☯ Full Synopsis : "ALS is not a curable disease, but it is a treatable one. Treatments are now available that can make a major difference in prolonging life and enhancing the quality of life for people with the disease, and there are treatments for many of the symptoms of ALS that can help ease its burden.Multidisciplinary teams in specialized ALS centers are providing top quality care and comprehensive rehabilitation for persons with ALS. In spite of the progressive nature of this disease and its clear tendency to shorten life, the momentum of research in this disease is expanding dramatically and numerous clinical trials are testing promising new therapies. Our understanding of the basic causes of ALS is expanding gradually. The substantial resources of patient advocacy groups such as the Amyotrophic Lateral Sclerosis Association and Muscular Dystrophy Association provide tremendous help and support for people with ALS and their families. Although the diagnosis of ALS can initially be devastating, the vast majority of people discovering new courage from within to battle this disease and live life with vigor and enthusiasm. The information in this book will prove useful to people with ALS and their families both in managing the disease and living within its limitations."Article| Dr. Robert G. Miller, MD| Statement ..."
♥ Book Title : Lou Gehrig Disease, Als Or Amyotrophic Lateral Sclerosis Explained. Als Symptoms, Signs, Stages, Types, Diagnosis, Treatment, Caregiver Tips, Aids And
☯ Full Synopsis : "The author, Robert Rymore, had a good friend who was diagnosed with Lou Gehrig Disease. He wanted to be able to help her and decided to buy some books about the disease. To his disappointment there was a lack of good informative books available on the subject. He decided to investigate the subject thoroughly and write a book about it to be able to help others. He decided he would start talking to professionals - doctors, physical therapists, speech therapists and occupational therapists - to learn more. He quickly realized the information he was getting would be extremely valuable for other people with ALS and their loved ones. This book has been a labor of love, one born of necessity and certainly one that aims to help those with ALS, their families, and their friends. ALS symptoms, signs, stages, types, diagnosis, treatment, caregiver tips, aids and what to expect is all covered. Including chapters about financial considerations, famous people with Lou Gehrig Disease and resources. The book is written in an easy to read and understandable style and contains tips for caregivers."Article| Robert Rymore| Statement ..."
♥ Book Title : Amyotrophic Lateral Sclerosis
☯ Full Synopsis : "This comprehensive guide covers every aspect of the management of ALS, beginning with discussions of clinical features of the disease, diagnosis, and an overview of symptom management. Major sections deal with medical and rehabilitative management, living with ALS, managing advanced disease, end-of-life issues, and resources that can provide support and assistance."Article| Hiroshi Mitsumoto| Statement ..."
♥ Book Title : Als
☯ Full Synopsis : "Eliot H. Dunsky, MD, is a retired physician who since his diagnosis in 2009 has been living with ALS, the complex, progressively debilitating disorder commonly known as Lou Gehrig's disease. Determined to maintain the best quality of life possible-for as long as possible-he extensively researched the condition and its management. As he immersed himself, talking to ALS patients and exploring emerging assistive technologies and aids, he realized that misunderstanding of this complicated disease was rife, preventing many from making the most of the precious years left. The result is this compilation of not only his personal experiences as his own condition advanced but also current research and links to additional specialized resources. Its aim is to help other patients learn to live with their diagnosis and navigate the day-to-day struggles associated with it. Appropriate symptom management can help fend off the devastating effects of the disease for a longer period of time. ALS: An Orientation offers a practical guide for patients and their families on maximizing quality of life through strategic care and, importantly, coping with the emotional toll the disease can take. A terminal diagnosis simply means savoring to the fullest the life that is still possible."Article| Eliot H. Dunsky, M.d.| Statement ..."
♥ Book Title : Navigating Life with Multiple Sclerosis
☯ Full Synopsis : "Navigating Life with Multiple Sclerosis will serve as a practical guide for meeting the challenges of this life-long disease. MS may cause a myriad of symptoms and varies greatly from person to person. The authors demystify MS and offer practical solutions and guidance based upon their extensive combined clinical and research experience. The book tackles many of the common symptoms experienced by the person with MS and looks into the future to explore where research is headed. If you are newly diagnosed or have been living with MS for years, this book is an invaluable guide."Article| Kathleen Costello| Statement ..."
♥ Book Title : I Remember Running
☯ Full Synopsis : "A little over a year ago, Darcy Wakefield was a single, 33-year-old, athletic, workaholic English professor, a vegetarian who had never had a serious health problem or injury. Then she was diagnosed with ALS, and her world turned upside down. I Remember Running is Darcy's story of change and loss and challenges during her first year with ALS, as she struggles to make sense of her diagnosis and redefine herself in the face of this terminal illness. With unflagging courage, wit, and eloquence, Darcy shares what she calls her "fast-forward" life, a life in which she applies for disability, leaves her job, and plans her own funeral as well as meets and moves in with her true love, buys a house, and gives birth to her first child in less time than it takes most of us to accomplish even one of these things. Beautifully written and wholly inspiring, I Remember Running proves that it is possible to live a rich, meaningful life after being diagnosed with a terminal illness. This book will move readers to see the world in a different light."Article| Darcy Wakefield| Statement ..."
♥ Book Title : Laugh to Death
☯ Full Synopsis : "Laugh to Death: My Rx for Dying Well with ALS, a collection of funny vignettes, chronicles a doctor’s end-of-life journey with ALS, also known as Lou Gehrig’s disease. Welsh’s unique outlook as a doctor-turned-patient, while at times serious and somber, is more often hilarious, if not irreverent. Throughout -- from the time of his self-diagnosis until his passing six years later -- Martin F. Welsh, M.D., reveals how a terminally ill person’s attitude can profoundly affect their quality of life."Article| Martin F. Welsh| Statement ..."
♥ Book Title : Amyotrophic Lateral Sclerosis
☯ Full Synopsis : "Amyotrophic Lateral Sclerosis: A Patient Care Guide for Clinicians is intended as a practical reference for clinicians caring for ALS patients, and will bring together the collective wisdom of those at the forefront of patient-oriented research and practice. This will be an official project of the ALS Research Group (founded by Dr. Mitsumoto and currently headed by Dr. Bedlack), and provides both an evidence-based and experience-based guide to multidisciplinary ALS care. The book will begin with a brief review of current concepts of ALS including diagnostic criteria, genetic and sporadic subtypes, epidemiology, co-morbidities and prognosis. Individual chapters then tackle the gamut of specific issues that arise in caring for people with ALS, from breaking the news all the way through end-of-life care and bereavement. Amyotrophic Lateral Sclerosis: A Patient Care Guide for Clinicians is divided by disciplines, mirroring the way large multi-disciplinary ALS clinics operate and includes pertinent material for each member of the care team. Each section will has one primary author from that discipline (an expert ALSRG member), who will review the specific issues they have seen arise and review the evidence-based options presented for each issue. Each section will also has a group of secondary authors, other experts from the same discipline who offer counterpoints or other ideas about how to handle clinical problems (i.e. use of lipids and statins, screening for driving, etc.)—essentially what has or hasn't worked for them—thus capturing the variety of opinions across experts in the field and providing real-world care information that isn't available or documented anywhere else."Article| Richard S. Bedlack, MD| Statement ..."
♥ Book Title : ALS Saved My Life... Until It Didn't
☯ Full Synopsis : "The author shares her insights and perspectives on living with ALS, or Lou Gehrig's disease, sharing both her thoughts on life and happiness as well as practical ideas for daily living with this progressive neuromuscular disease."Article| Dr. Jenni Kleinman Berebitsky| Statement ..."
♥ Book Title : More Love, Less Fear
☯ Full Synopsis : "The despair that befalls a family when one of its own is forever changed by illness or tragedy is an experience we can only hope to escape. A serious accident, stroke, terminal illness, or more can cause stress and sorrow that are often unbearable. But we don’t get to choose from a menu of life lessons. We simply wake up one day to them sitting on our plate. The question then becomes: What do you do? Daybreak jogs, PTA meetings, church choir rehearsals, laughter, and family time—these were the basic ingredients of Robert and Theresa Lee’s life together. Then, at age forty-three, Theresa was diagnosed with ALS. With raw honesty and grace, Robert chronicles the inspiring story of his late wife’s twelve-year dance with the disease, his role as her caregiver, and the highs and lows ALS took their marriage through. A touching memoir filled with moments of lightheartedness, wisdom and simple humanity, readers will be uplifted by this brave couple’s tale of unconditional love and their ultimate message: “You are not alone.” “Life is a never-ending teacher of lessons. The question is, ‘Are we paying attention?’ In 2002, my life, which all along had been filled with many of these blessings-lessons—or blessons as I called them—presented the greatest challenge my family and I would have to face yet.” —Robert Lee, author"Article| Robert and Theresa Lee| Statement ..."
♥ Book Title : Stop Alzheimer's Now!
☯ Full Synopsis : "Over 35 million people have dementia today. Each year 4.6 million new cases occur world-wide -- one new case every 7 seconds. Alzheimer's disease is the most common form of dementia. Parkinson's disease, another progressive brain disorder, affects about 4 million people world-wide. Millions more suffer with other neurodegenerative disorders. The number of people affected by these destructive diseases continues to increase every year. Dementia and other forms of neurodegeneration are not a part of the normal ageing process. The brain is fully capable of functioning normally for a lifetime, regardless of how long a person lives. While ageing is a risk factor for neurodegeneration, it is not the cause! Dementia and other neurodegenerative disorders are disease processes that can be prevented and successfully treated. This book outlines a program using ketone therapy and diet that is backed by decades of medical and clinical research and has proven successful in restoring mental function and improving both brain and overall health. You will learn how to prevent and even reverse symptoms associated with Alzheimer's disease, Parkinson's disease, amyotrophic lateral sclerosis (ALS), multiple sclerosis (MS), Huntington's disease, epilepsy, diabetes, stroke, and various forms of dementia. The information in this book is useful not only for those who are suffering from neurodegenerative disease but for anyone who wants to be spared from ever encountering one or more of these devastating afflictions. These diseases don't just happen overnight. They take years, often decades, to develop. In the case of Alzheimer's disease, approximately 70 percent the brain cells responsible for memory are destroyed before symptoms become noticeable. You can stop Alzheimer's and other neurodegenerative diseases before they take over your life. The best time to start is now."Article| Bruce Fife| Statement ..."