♥ Book Title : ALS Saved My Life... Until It Didn't
☯ Full Synopsis : "The author shares her insights and perspectives on living with ALS, or Lou Gehrig's disease, sharing both her thoughts on life and happiness as well as practical ideas for daily living with this progressive neuromuscular disease."Article| Dr. Jenni Kleinman Berebitsky| Statement ..."
✩ Als Saved My Life Until It Didn T ✩
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♥ Book Title : I Remember Running
☯ Full Synopsis : "A little over a year ago, Darcy Wakefield was a single, 33-year-old, athletic, workaholic English professor, a vegetarian who had never had a serious health problem or injury. Then she was diagnosed with ALS, and her world turned upside down. I Remember Running is Darcy's story of change and loss and challenges during her first year with ALS, as she struggles to make sense of her diagnosis and redefine herself in the face of this terminal illness. With unflagging courage, wit, and eloquence, Darcy shares what she calls her "fast-forward" life, a life in which she applies for disability, leaves her job, and plans her own funeral as well as meets and moves in with her true love, buys a house, and gives birth to her first child in less time than it takes most of us to accomplish even one of these things. Beautifully written and wholly inspiring, I Remember Running proves that it is possible to live a rich, meaningful life after being diagnosed with a terminal illness. This book will move readers to see the world in a different light."Article| Darcy Wakefield| Statement ..."
♥ Book Title : Navigating Life with Amyotrophic Lateral Sclerosis
☯ Full Synopsis : "Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS, a disease that affects approximately 5,600 Americans every year, with as many as 30,000 people managing the disease at any given time. ALS is a difficult disease for the patient and is also challenging for the caregiver and family as there are many questions, issues relating to care, and problems to manage. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Navigating Life with Amyotrophic Lateral Sclerosis is unique because it covers two perspectives: one author is a neurologist with 30 years of experience treating ALS patients, and the other author experienced first-hand the issues in providing care for a parent with ALS. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease."Article| Mark B. Bromberg| Statement ..."
♥ Book Title : The Best of the Worst News
☯ Full Synopsis : "Norman MacIsaac was alone on a cold December day when he received his worst news. At first, he didn't know what to do with a prognosis of just a few years to live, growing more and more disabled until he could no longer move, swallow, or, in the end, breathe. Travel the world with the author in search of wisdom and inspiration, from the Himalayas to the slums of Mumbai, from his home in Montreal to the African savannah. Written over nearly five years, this is an authentic "live" look at the multiple and evolving challenges, the frustrations and unparalleled joy that mark living with a degenerative terminal illness. This book is about the emotional and psychological aspects rather than the medical side of amyotrophic lateral sclerosis (ALS)--also known as Lou Gehrig's or Motor Neuron Disease. It's about focusing on what's really important and overcoming obstacles to experience the best that remains to be lived. It's an ode to a life well lived and an audacious approach to defiantly embracing the best of the worst news. Norman MacIsaac has spent a lifetime travelling, living abroad, and working with inspiring people from diverse cultures around the world. His diagnosis with ALS led him to share the experiences that have heightened his perspective and resilience in the face of this incurable, crippling and ultimately terminal condition. He lives in Montreal, Canada with his wife of thirty-two years, and has two sons and one daughter."Article| Norman Macisaac| Statement ..."
♥ Book Title : Laugh to Death
☯ Full Synopsis : "Laugh to Death: My Rx for Dying Well with ALS, a collection of funny vignettes, chronicles a doctor’s end-of-life journey with ALS, also known as Lou Gehrig’s disease. Welsh’s unique outlook as a doctor-turned-patient, while at times serious and somber, is more often hilarious, if not irreverent. Throughout -- from the time of his self-diagnosis until his passing six years later -- Martin F. Welsh, M.D., reveals how a terminally ill person’s attitude can profoundly affect their quality of life."Article| Martin F. Welsh| Statement ..."
♥ Book Title : Just Another Adventure
☯ Full Synopsis : "LaPerriere's essays describe his struggle with Amyotrophic Lateral Sclerosis. Living in a small Alaskan city exacerbates the political and physical challenges, but with family and community, this former mountain climber, cave scuba diver and sailor fells the "ALS monster" that robs him of ability after ability with humor and grace."Article| Marcel Laperriere| Statement ..."
♥ Book Title : Blitz Your Life
☯ Full Synopsis : "If you've ever dreamed of something more in life, this book is for you. Winner in two categories at the 2018 Benjamin Franklin Awards, Blitz Your Life is a collection of reflections from a former NFL linebacker on a life lived fearlessly and challenges from a man with a sense of urgency for impact. These powerful stories range from Tim's time on the football field to the radically different life and goals that resulted from his diagnosis with ALS in 2014. Tim also shares stories of ordinary people who have faced everyday challenges and accomplished extraordinary things. Whether they sweep floors or rebuild neighborhoods or make music, all are living lives that make a difference. At times funny and others serious, Tim encourages readers to write their own goals and stories while pursuing their dreams. Through his whiteboard challenges, he provides practical help that takes readers on a road to success. From his NFL days to his support of ALS awareness, this fighter's message is a courageous call to find and enjoy a life with purpose."Article| Tim Shaw| Statement ..."
♥ Book Title : The Pretty One
☯ Full Synopsis : "From the disability rights advocate and creator of the #DisabledAndCute viral campaign, a thoughtful, inspiring, and charming collection of essays exploring what it means to be black and disabled in a mostly able-bodied white America. Keah Brown loves herself, but that hadn’t always been the case. Born with cerebral palsy, her greatest desire used to be normalcy and refuge from the steady stream of self-hate society strengthened inside her. But after years of introspection and reaching out to others in her community, she has reclaimed herself and changed her perspective. In The Pretty One, Brown gives a contemporary and relatable voice to the disabled—so often portrayed as mute, weak, or isolated. With clear, fresh, and light-hearted prose, these essays explore everything from her relationship with her able-bodied identical twin (called “the pretty one” by friends) to navigating romance; her deep affinity for all things pop culture—and her disappointment with the media’s distorted view of disability; and her declaration of self-love with the viral hashtag #DisabledAndCute. By “smashing stigmas, empowering her community, and celebrating herself” (Teen Vogue), Brown and The Pretty One aims to expand the conversation about disability and inspire self-love for people of all backgrounds."Article| Keah Brown| Statement ..."
♥ Book Title : I Forgot to Remember
☯ Full Synopsis : "Documents the story of an amnesia survivor who permanently lost all of her memories after a traumatic brain injury and who endured a more than 25-year effort to relearn basic skills and reclaim her life."Article| Su Meck| Statement ..."
♥ Book Title : Personal Trials
☯ Full Synopsis : "ALS is fatal. There is no cure. There is only one approved treatment, which extends the life span of ALS patients by an average of only three months. But one group of patients took their treatments into their own hands-fighting not just for their lives, but for a disease community that for years has struggled to be heard. Personal Trials is the story of Ben Harris, Rob Tison, and Eric Valor, who joined dozens of other patients in meticulously researching experimental treatments and in dosing themselves with chemical substitutes. All the while, the patients tracked their results openly online-charting thrilling improvements and devastating physical decline-hoping their experiences would enlighten others and advance ALS research. Facing a frustratingly slow and opaque biomedical research system, they believed their most important work was to share their data with the world. As Ben always said, "If it is done in secret, it is done in vain.""Article| Jef Akst| Statement ..."
♥ Book Title : Tuesdays with Morrie
☯ Full Synopsis : "Its been ten years since Mitch Albom first shared the wisdom of Morrie Schwartz with the world. Now twelve million copies later in a new afterword, Mitch Albom reflects again on the meaning of Morries life lessons and the gentle, irrevocable impact of their Tuesday sessions all those years ago. Maybe it was a grandparent, or a teacher, or a colleague. Someone older, patient and wise, who understood you when you were young and searching, helped you see the world as a more profound place, gave you sound advice to help you make your way through it. For Mitch Albom, that person was Morrie Schwartz, his college professor from nearly twenty years ago. Maybe, like Mitch, you lost track of this mentor as you made your way, and the insights faded, and the world seemed colder. Wouldn't you like to see that person again, ask the bigger questions that still haunt you, receive wisdom for your busy life today the way you once did when you were younger? Mitch Albom had that second chance. He rediscovered Morrie in the last months of the older man's life. Knowing he was dying, Morrie visited with Mitch in his study every Tuesday, just as they used to back in college. Their rekindled relationship turned into one final class: lessons in how to live. Tuesdays with Morrieis a magical chronicle of their time together, through which Mitch shares Morrie's lasting gift with the world."Article| Mitch Albom| Statement ..."
♥ Book Title : Someone I Love Has ALS
☯ Full Synopsis : "Kevin and Jodi O'Donnell, were a young New Jersey couple busy raising a toddler and making plans for their future when they received life-altering news in 1995 that changed everything as they knew it. Kevin was only 30 years old when he was told that his health problems were the result of a rare, terminal disease called ALS (Amyotrophic Lateral Sclerosis), or Lou Gehrig's disease. Kevin and Jodi had not heard of ALS until then and had no idea how those three letters would challenge everything they thought to be certain. After more than 20 years of working with ALS families, Jodi realized that more information and better resources could be available to help families who are coming to grips with the challenges of the disease and the caregiving responsibilities that are involved. In the Introduction to "Someone I Love Has ALS: A Family Caregiver's Guide," Jodi recounts the journey she took as a caregiver, advocate and writer and embraces and shares the lessons learned throughout the pages of this wonderful guide, "This guide was created by a variety of caregivers and professionals who have years of experience with various aspects of ALS. It was written by volunteers and experts who care about ALS and your journey. It is the resource that I wish we had received along with the shocking diagnosis." Although Kevin died of ALS in 2001 at the age 35, the disease never won the battle. ALS only strengthened Kevin and Jodi's love for God and each other and it created an even bigger purpose and plan: the creation of Hope Loves Company(r), the only non-profit whose mission is to support the children and grandchildren caregivers of PALS (people with ALS)."Article| Jodi O'Donnell-Ames| Statement ..."